Share4Rare
A registry to investigate how COVID-19 affects people with rare diseases
People with rare diseases are doubly vulnerable to COVID-19: on the one hand, many of these pathologies put patients' health at a higher risk during a SARS-CoV-2 infection, and, on the other, confinement and lack of medical care due to the saturation of certain health services are making it difficult to treat these patients. If little is known about how this new infectious disease affects people without previous pathologies, even less is known about the effect of COVID-19 in people with unknown rare diseases.