EU-IPFF European Idiopathic Pulmonary Fibrosis & Related Disorders Federation
The EU-IPFF is registered in Belgium as an International Non-Profit Organisation. Founded in 2016 by a European group of patients and advocates, it currently has a membership of 22 groups from 16 European countries. Its mission is based around the European IPF Patient Charter that was drafted by the founding patients in 2014. In summation the EU-IPFF serves to act as a unified voice for our members and the patients suffering from the many forms of Pulmonary Fibrosis. Alongside the many ERS members who form our Scientific Advisory Board we strive to improve the diagnosis, support of patients as laid out within the Patient Charter and to see it adopted across the nations.