A virtual platform for advocacy organizations and patients they support.

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A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

Explore Our New Exhibitor Page!

In lieu of a live session for the month of July, we will be showcasing the amazing organizations on The Advocacy Exchange's Exhibitor Pages and highlighting the hundreds of resources available to you, our advocates.

Exhibitor include resources such as readable documents, YouTube videos, contact information, external links, social media links, and more.

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Uniting Patient Advocates

The Advocacy Exchange is a virtual platform created to unite advocacy organizations, patients, and industry leaders in the exchange of information. It is a global collaboration, co-created and co-led, and ‘always on’ to foster meaningful growth and partnership across disease areas to improve outcomes for patients.

Created initially to support the urgent needs of the patient advocacy community as the COVID Advocacy Exchange (CAE), The Advocacy Exchange is a first-of-its-kind platform offering live, interactive discussions through which patient voices are heard, and a virtual exhibit hall where participating organizations can share resources and learn from one another – all available free of charge, 24/7. The platform also includes a newsroom, searchable resource library and chatroom for discussion amongst the Working Groups in between meetings.

Working Groups

Expert-led focus discussions let you choose how you participate.

Racial & Ethnic Health and Healthcare Disparities
Led By Shelia Thorne

Access to Care
Led By Brad Love

Patient Voice/Patient-Focused Drug Development
Led By Neil Bertelsen

The Future of Advocacy
Led By Gary Nolan

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Featured Sessions

09/01/2022

Nurturing Yourself while Navigating the Nuances of Caregiving

Caregiving can take on many forms. Whether it’s physically caring for a loved one who is in treatment or managing a chronic disease, working with patients, or providing critical emotional support to those in need, caregivers often, and inadvertently, put their own needs aside. During this session, we’ll talk openly about different factors that can impact a caregiving experience, including cultural influences, caregiving from a distance, and managing care during times of personal stress. We’ll also discuss how caregivers can create balance between caring for another and managing their own mental health and well-being.

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08/04/2022

Making Space to Care for Yourself

When flight attendants review safety procedures they tell you to take care of your own oxygen mask before assisting other people. This concept applies to advocacy as well. You must take care of yourself in order to be at your best to help other people. With this in mind, we invite you to join us for this session of The Advocacy Exchange that’s focused on YOU. During this session, attendees will learn how meditation can help reduce stress and participate in a guided meditation exercise. You will also have the opportunity to ask the instructor questions. We hope you’ll join us and allow yourself some time for reflection on your own well-being and mental health.

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06/02/2022

Create Change Through Lived Experience: The Whole Advocate™ Model

Any movement toward positive change requires people sharing their lived experiences—to give voice, raise awareness, change minds, educate or motivate. It requires advocates. But how can advocates feel confident that their stories are being heard and truly making a difference? Join Tim Cage and John Capecci, cofounders of Living Proof Advocacy, as they describe their model of support for advocates sharing their personal stories.

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05/12/2022

Designing with the Patient in Mind: Amplifying the Patient Voice in Medicines Development and Approval

Insights from the patient community are valuable in designing and developing medicines and treatments that positively impact the patients who need them most. By including patients in each cycle of medicines development, from early research and clinical studies to approval and use of medicines, stakeholders in healthcare can ensure that the patient voice is heard and incorporated to improve health outcomes. Join us for this panel discussion, featuring advocates with global experience, who will examine early research, clinical development and Health Technology Assessment/Regulatory from the perspectives of the advocate and patient communities.

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