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Welcome

    Program
  • About
    • About
    • Working Groups
    • FAQ
    • News
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The Advocacy Exchange Logo
A virtual platform for advocacy organizations and patients they support.

More Info

The Advocacy Exchange Logo
A virtual platform for advocacy organizations and patients they support.

More Info

The Advocacy Exchange Logo
A virtual platform for advocacy organizations and patients they support.

More Info

The Advocacy Exchange Logo
A virtual platform for advocacy organizations and patients they support.

More Info

Live Session Working Groups

Expert-led focus discussions let you choose how you participate.


Racial and Ethnic Disparities Led By Shelia Thorne
Racial & Ethnic Health and Healthcare Disparities
Led By Shelia Thorne
Access to Care Led By Brad Love
Access to Care
Led By Brad Love
Patient Focused Drug Development Led By Neil Bertelsen
Patient Voice/Patient-Focused Drug Development
Led By Neil Bertelsen
The Future of Advocacy Led By Gary Nolan
The Future of Advocacy
Led By Gary Nolan

Uniting Patient Advocates

The Advocacy Exchange is a virtual platform created to unite advocacy organizations, patients, and industry leaders in the exchange of information. It is a global collaboration, co-created and co-led, and ‘always on’ to foster meaningful growth and partnership across disease areas to improve outcomes for patients.

Created initially to support the urgent needs of the patient advocacy community as the COVID Advocacy Exchange (CAE), The Advocacy Exchange is a first-of-its-kind platform offering live, interactive discussions through which patient voices are heard, and a virtual exhibit hall where participating organizations can share resources and learn from one another – all available free of charge, 24/7. The platform also includes a newsroom, searchable resource library and chatroom for discussion amongst the Working Groups in between meetings.

Register today and join us!

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Uniting Patient Advocates

New Platform Features

Learn about the evolution and new features of The Advocacy Exchange including:

  • Live discussion sessions, with 24-7 on-demand access to recordings
  • Collaborative working groups and chat rooms to meet with peers and experts
  • An exhibit hall highlighting patient advocacy groups across the globe
  • A newsroom filled with coverage on the Advocacy Exchange

Featured Sessions

Create Change Through Lived Experience: The Whole Advocate™ Model

06/02/2022

Create Change Through Lived Experience: The Whole Advocate™ Model

Any movement toward positive change requires people sharing their lived experiences—to give voice, raise awareness, change minds, educate or motivate. It requires advocates. But how can advocates feel confident that their stories are being heard and truly making a difference? Join Tim Cage and John Capecci, cofounders of Living Proof Advocacy, as they describe their model of support for advocates sharing their personal stories. Participants receive a free eBook version of Living Proof: Telling Your Story to Make a Difference and may download the white paper Improving the Quality of Patient Engagement by Centering the Advocate. Tim and John will share examples of how advocacy organizations have applied the Whole Advocate model, and offer tips on using Living Proof to prepare personal stories that move listeners from apathy to empathy to action. Once your personal story is perfected, join Kate Callan, EVP, Head of Social Media at Evoke KYNE, for tips and best practices to amplify your story on social media. Taking the leap to share your story on social media may feel intimidating but this session will arm you with some simple suggestions to get started or refresh your approach if you’re already active on social.

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Designing with the Patient in Mind: Amplifying the Patient Voice in Medicines Development and Approval

05/12/2022

Designing with the Patient in Mind: Amplifying the Patient Voice in Medicines Development and Approval

Insights from the patient community are valuable in designing and developing medicines and treatments that positively impact the patients who need them most. By including patients in each cycle of medicines development, from early research and clinical studies to approval and use of medicines, stakeholders in healthcare can ensure that the patient voice is heard and incorporated to improve health outcomes. Join us for this panel discussion, featuring advocates with global experience, who will examine early research, clinical development and Health Technology Assessment/Regulatory from the perspectives of the advocate and patient communities.

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Moving Medicine Forward: Highlighting Humanity and Patient Experience in Clinical Trials

04/07/2022

Moving Medicine Forward: Highlighting Humanity and Patient Experience in Clinical Trials

There can be no improvement in medicines without clinical trials. There is no movement forward in healthcare without research. People are at the heart of patient-centric advancements, however it’s not one-size-fits-all. In this panel discussion, we will explore the importance of research participation and representation in improving healthcare outcomes, as well as how researchers are actively making strides to improve the patient experience.

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Health Equity: Reinventing Treatment through the Lens of Gender

03/03/2022

Health Equity: Reinventing Treatment through the Lens of Gender

How providers interpret the needs of their patients can often dictate health outcomes. While standardized approaches to healthcare have established practices intended to equalize quality of care, when patients are treated by providers who don’t understand them, this type of care can fall short of meeting individual needs. Join us as we explore health equity through the lens of gender and discuss how traditional and evolving definitions of gender identity can create nuances in the physiological and social elements of personal care.

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Uniting Patient Advocates

Past Sessions

Assertiveness is Not Aggression: Accessible Strategies to Advocate for Quality Care

02/03/2022

Assertiveness is Not Aggression: Accessible Strategies to Advocate for Quality Care

Patients are People: Improving Cultural Competency to Reduce Healthcare Disparities

01/20/2022

Patients are People: Improving Cultural Competency to Reduce Healthcare Disparities

The Power of Advocacy: Lessons Learned from HIV Advocates

12/09/2021

The Power of Advocacy: Lessons Learned from HIV Advocates

End of Life Care: A Retired Hospice Counselor Creates a Safe Space for an Uncomfortable Conversation

11/30/2021

End of Life Care: A Retired Hospice Counselor Creates a Safe Space for an Uncomfortable Conversation

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