A virtual platform for advocacy organizations and patients they support.

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A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

Explore Our New Exhibitor Page!

In lieu of a live session for the month of July, we will be showcasing the amazing organizations on The Advocacy Exchange's Exhibitor Pages and highlighting the hundreds of resources available to you, our advocates.

Exhibitor include resources such as readable documents, YouTube videos, contact information, external links, social media links, and more.

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Uniting Patient Advocates

The Advocacy Exchange is a virtual platform created to unite advocacy organizations, patients, and industry leaders in the exchange of information. It is a global collaboration, co-created and co-led, and ‘always on’ to foster meaningful growth and partnership across disease areas to improve outcomes for patients.

Created initially to support the urgent needs of the patient advocacy community as the COVID Advocacy Exchange (CAE), The Advocacy Exchange is a first-of-its-kind platform offering live, interactive discussions through which patient voices are heard, and a virtual exhibit hall where participating organizations can share resources and learn from one another – all available free of charge, 24/7. The platform also includes a newsroom, searchable resource library and chatroom for discussion amongst the Working Groups in between meetings.

Working Groups

Expert-led focus discussions let you choose how you participate.

Racial & Ethnic Health and Healthcare Disparities
Led By Shelia Thorne

Access to Care
Led By Brad Love

Patient Voice/Patient-Focused Drug Development
Led By Neil Bertelsen

The Future of Advocacy
Led By Gary Nolan

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Featured Sessions

12/01/2022

The Global Impact of Human Rights

As Nelson Mandela once said, “To deny people their human rights is to challenge their very humanity.” Humanity is at the core of all that we do. That’s why The Advocacy Exchange is proud to honor Universal Human Rights Month in December, as well as United Nations Human Rights Day on December 10. As we bring 2022 to a close, we’ll reflect on our work over 32 sessions of The Advocacy Exchange that has spotlighted advances in human rights within the healthcare space, as well as discuss the importance of Patient Rights for individual care. Please join us for this meaningful discussion about the power and impact of protecting the rights of people all over the world.

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11/10/2022

Checkbooks and Balances: How Advocacy Can Support Both Physical and Financial Health

For many people, living with disease is more than managing physical health. Everyday expenses and the ability to afford quality medical care, even with insurance, can be overwhelming. Socioeconomic challenges, depleted personal finances and understanding changing policies are just a couple of the challenges that people face in pursuit of care. The good news? Patient advocacy organizations often have resources that can help ease the financial burden. Join us for this session, where we’ll talk openly about balancing physical and financial health and how patient advocacy is leading the way to support people in these areas.

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10/06/2022

Managing Your Mental Health While Facing a Chronic Illness

Managing a chronic illness is a lifelong journey that impacts people in different ways. In addition to maintenance medications, frequent health visits and daily efforts to be as healthy as possible, the mental component of a lifelong disease can carry enormous weight. Prioritizing your mental and emotional well-being to the best of your ability is critical, whether you’re navigating stigmas associated with the visible or perceived impact of a chronic illness, combating worsening symptoms brought on by stress or just doing your best when you’re not feeling your best. We invite you to join us for an open and honest conversation about how to embrace positivity and support your mental health while facing a chronic illness.

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09/01/2022

Nurturing Yourself while Navigating the Nuances of Caregiving

Caregiving can take on many forms. Whether it’s physically caring for a loved one who is in treatment or managing a chronic disease, working with patients, or providing critical emotional support to those in need, caregivers often, and inadvertently, put their own needs aside. During this session, we’ll talk openly about different factors that can impact a caregiving experience, including cultural influences, caregiving from a distance, and managing care during times of personal stress. We’ll also discuss how caregivers can create balance between caring for another and managing their own mental health and well-being.

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