A virtual platform for advocacy organizations and patients they support.

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A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

A virtual platform for advocacy organizations and patients they support.

More Info

Explore Our New Exhibitor Page!

In lieu of a live session for the month of July, we will be showcasing the amazing organizations on The Advocacy Exchange's Exhibitor Pages and highlighting the hundreds of resources available to you, our advocates.

Exhibitor include resources such as readable documents, YouTube videos, contact information, external links, social media links, and more.

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Uniting Patient Advocates

The Advocacy Exchange is a virtual platform created to unite advocacy organizations, patients, and industry leaders in the exchange of information. It is a global collaboration, co-created and co-led, and ‘always on’ to foster meaningful growth and partnership across disease areas to improve outcomes for patients.

Created initially to support the urgent needs of the patient advocacy community as the COVID Advocacy Exchange (CAE), The Advocacy Exchange is a first-of-its-kind platform offering live, interactive discussions through which patient voices are heard, and a virtual exhibit hall where participating organizations can share resources and learn from one another – all available free of charge, 24/7. The platform also includes a newsroom, searchable resource library and chatroom for discussion amongst the Working Groups in between meetings.

Working Groups

Expert-led focus discussions let you choose how you participate.

Racial and Ethnic Disparities Led By Shelia Thorne

Racial & Ethnic Health and Healthcare Disparities
Led By Shelia Thorne

Access to Care
Led By Brad Love

Patient Voice/Patient-Focused Drug Development
Led By Neil Bertelsen

The Future of Advocacy
Led By Gary Nolan

Featured Sessions

06/02/2022

Create Change Through Lived Experience: The Whole Advocate™ Model

Any movement toward positive change requires people sharing their lived experiences—to give voice, raise awareness, change minds, educate or motivate. It requires advocates. But how can advocates feel confident that their stories are being heard and truly making a difference? Join Tim Cage and John Capecci, cofounders of Living Proof Advocacy, as they describe their model of support for advocates sharing their personal stories. Participants receive a free eBook version of Living Proof: Telling Your Story to Make a Difference and may download the white paper Improving the Quality of Patient Engagement by Centering the Advocate. Tim and John will share examples of how advocacy organizations have applied the Whole Advocate model, and offer tips on using Living Proof to prepare personal stories that move listeners from apathy to empathy to action. Once your personal story is perfected, join Kate Callan, EVP, Head of Social Media at Evoke KYNE, for tips and best practices to amplify your story on social media. Taking the leap to share your story on social media may feel intimidating but this session will arm you with some simple suggestions to get started or refresh your approach if you’re already active on social.

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05/12/2022

Designing with the Patient in Mind: Amplifying the Patient Voice in Medicines Development and Approval

Insights from the patient community are valuable in designing and developing medicines and treatments that positively impact the patients who need them most. By including patients in each cycle of medicines development, from early research and clinical studies to approval and use of medicines, stakeholders in healthcare can ensure that the patient voice is heard and incorporated to improve health outcomes. Join us for this panel discussion, featuring advocates with global experience, who will examine early research, clinical development and Health Technology Assessment/Regulatory from the perspectives of the advocate and patient communities.

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04/07/2022

Moving Medicine Forward: Highlighting Humanity and Patient Experience in Clinical Trials

There can be no improvement in medicines without clinical trials. There is no movement forward in healthcare without research. People are at the heart of patient-centric advancements, however it’s not one-size-fits-all. In this panel discussion, we will explore the importance of research participation and representation in improving healthcare outcomes, as well as how researchers are actively making strides to improve the patient experience.

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03/03/2022

Health Equity: Reinventing Treatment through the Lens of Gender

How providers interpret the needs of their patients can often dictate health outcomes. While standardized approaches to healthcare have established practices intended to equalize quality of care, when patients are treated by providers who don’t understand them, this type of care can fall short of meeting individual needs. Join us as we explore health equity through the lens of gender and discuss how traditional and evolving definitions of gender identity can create nuances in the physiological and social elements of personal care.

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